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Recurrence Post RALP: Did a second opinion change your plan?
Prostate Cancer | Last Active: Apr 11 10:39am | Replies (58)Comment receiving replies
@surftohealth88 Thanks so much. I have been reading your posts for a while as I know we are navigating the same terrain. Even when you think you know the answers, it just helps to hear them from someone else. I find I lose my ability to think objectively. I do need to be more of a pest with my Dr.. My inclination with this thing is to "DO IT NOW" which I don't think is a bad strategy based on what we know. Dave
Replies to "@surftohealth88 Thanks so much. I have been reading your posts for a while as I know..."
@dhasper
I think KUMC thought I was being a pest or at least asking too many questions. I was actually being very nice- but not feeling nice at all. But I held my temper! Still didn't get answers for weeks and sometimes not at all. I had the same thought do it now on getting the PR. Finely went someplace else that is not nationally recognized, but does treat me well and will actually talk to me. I do know him as he has treated me for BPH. Also, know that he has done thousands of RARP with good results.
I found it hard to find that line of not being a pest and making them mad while getting answers. It seems sometimes these big clinics think I should just listen and do what they say and not ask questions. I am not questing their skills, I just want to know facts and options.
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@dhasper
Oh yes : (((, tell me about it - with all that I know I sometimes feel paralyzed and unable to reason : ((( , literary like a rabbit frozen and staring at snake like an idiot.
There were times when a well wishing member would tell me "well it was expected" OR " you know by now what to do" and I would be whimpering and saying to myself "no I don't know what to do" and "I should have expected it but I hoped for another result since I HAD TO : ((((" , or I would just fall apart 😢.
So yes - it helps a great deal to hear confirmation or reminder or explanation AGAIN and I am glad if I "reminded" you to push for what you want or need < 3.