Wow... I have read through everyone's posts. TBI's are hard. I was diagnosed with a Severe TBI when I was in a motor vehicle accident when I was 16, which left me in a two-week coma. I struggled for many, many years. I was put on seizure meds when I was in college because an EEG showed I had seizure activity in my brain, but I chose to eventually go off them because I was a zombie. I have always had these twitches, but never lost control. I know they are not seizures. After my accident, I got into cross country. Running has saved my life because no matter what I went through, the pain, I would run more/ push through it. For some reason, running releases endorphins and hormones that make me feel good about myself.

I am here again today because a box fell on the back of my head at a leisurely, seasonal job that I took for the socialization aspect. It has been hard because when I, a TBI patient who had a concussion 30 years ago, was treated like a regular person. I had to advocate for myself because I was given the "wait and see" protocol. When I got in to see a General Neurologist, it was still the "wait and see" protocol. The Brain Rehab Physical Therapy I was in wasn't working, so all my sessions were canceled. I am having problems with fluctuations in my blood pressure. My baseline pre-2nd concussion was 100/70, and now resting BP is around 130/80, and when I exercise, it can get up to 150's/130's. Also, my twitches have turned into clearly visible involuntary jerks. I have an EEG scheduled in late April that I fear will show seizure activity in my brain. I do not want to be put on seizure meds when I have never had a problem with seizures. I have many other diagnoses

I understand the struggles TBI patients go through. I haven't experienced problems with seizures, and my heart goes out to all. If anyone can relate to anything I have written, it is nice to know I am not alone. Finding Mayo Connect was good for me, and I look forward to reading any updates. The support has been a good change because I currently dread Mato Appointments. I may need support going to future appointments, so I was thinking about asking my mom to go with me.