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Profile picture for nannybb @nannybb

@jhhaas I'm just wondering, if you have multiple nets throughout your lungs, why your doctor did not feel Octreotide was the next step. I have 3 more very small tumors in my lungs, and my doctor said the injects could help keep them from growing (?) I am waiting to be able to go back to work and I am worried about the side effects of Octreotide.

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Replies to "@jhhaas I'm just wondering, if you have multiple nets throughout your lungs, why your doctor did..."

@nannybb I think it’s because I don’t have too many bad symptoms at this point. I do not have the cough that many have, but I do get scanned every six months so if there’s any changes then that would be a possibility. The doctor was my surgeon at Sloan, where I went for a second opinion, and he immediately suspected correctly what it turned out to be. So he does the follow ups to make sure it has stayed the same, but he referred me to a local pulmonologist. However, that doctor doesn’t know much about it. Right now I figure because my symptoms are not so bad, I’m OK with no treatment because I know with treatment comes potential side effects. If it progresses or things start to change, I’m sure he will refer me. I have thought about getting a second opinion with a net specialist in Philly but I have not done that yet. He tells me to go live my life and that I am very lucky so far. I am also older, 76, so maybe that factors into it as well? I don’t know. But so far so good.