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i am taking the shot "L"

Neuroendocrine Tumors (NETs) | Last Active: Apr 9 7:25am | Replies (23)

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Profile picture for skjones56 @skjones56

Morning, My stools were soft and grey after the first shot but once I started taking Creon with every meal I returned to normal. Only had 2 shots so far but all has been good. Oncologist appointments have been at the VA (very good and helpful) who then referred me to Dana Farber to see a NET oncologist. The appointments there were ok but cut and dry. More of a tests, results, treatment, out the door see you in three months for follow-up Scan. We have now decided to see if I could get into any trials, so I have an upcoming appointment at MD Anderson. In the meantime I am just adjusting to the change in life style, what I can eat, how often I should eat and protect my immune system the best I can. Most importantly I thank God I am still upright and functionable.

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Replies to "Morning, My stools were soft and grey after the first shot but once I started taking..."

@skjones56 Are you aware of any specific trials, or are you just information gathering at this point? Adjusting one's life style can be a challenge, but sometimes it is necessary to put up your best fight. I agree with you. I too am thankful that I am still upright and functional.