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C125 test anyone?
I am 19 months post treatments for stage 3C1 endometrial cancer. I just curious as to how many have the C125 test done as a part of your follow up visits? I have never had this test done and in my research on recurrence, I am finding a lot of oncologists include this test in follow up screenings. Should I be asking my doctor to do this test??
Thanks!
Anna
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The ca125 test just says there’s something wrong in the abdomen. It’s not specific to cancer, so don’t freak if it’s high - it could just be a UTI.
My oncologist keeps getting my ca125 tested, but I have had recurrent ovarian cancer for so long that the ca125 no longer responds to it. It’s been “normal” while I’ve had the disease for about 7 years!
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3 ReactionsYes, ca125 is included in blood tests, along with ca 15-3 and 19-9. I have serous cell endometrial cancer 3C2.
@scrappy1006 Welcome to Mayo Clinic Connect and to our Gynecological Cancers Support Group.
Here is some information from Mayo Clinic about the C125 blood test:
CA125 Test:
-- https://www.mayoclinic.org/tests-procedures/ca-125-test/about/pac-20393295
In my case I have asked my oncologist and providers any questions that occur to me. I write these questions on paper so I can keep track of my questions and don't forget them before my appointment. I've learned that these blood tests are useful but the numbers (results) can be variable. For this reason, if a provider orders these blood tests these will be one of a series of tests that are ordered including CT or PET scans or other blood tests. The blood tests alone such as CA125 are not predictive of cancer - the other tests are needed to give the provider the full picture.
I'd recommend that you talk with your oncologist about the CA125 test. Are you currently in treatment with radiation, chemotherapy, immunotherapy? When is your next appointment with your oncologist?
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1 ReactionI would request it simply because it's one tool in the toolbox and we need them all. However, although there is a universally accepted normal range, the value is most useful when it's evaluated against what is normal for you specifically. Mine was 6 before any treatment. It's 3 today. My doctor said 10 would be bad for me, yet it falls within normal. In your case, you wont be able to compare the number you get today with what it was prior to treatment which is unfortunate, but it may prove useful moving forward with future comparisons.
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