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Adult Life after a Traumatic Brain Injury

Traumatic Brain Injury (TBI) | Last Active: Sep 17 9:12pm | Replies (264)

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Profile picture for laura @laura1961

@kayabbott I have not had any meds since about 2012, as they were making my seizures worse or not helping at all. I have looked into a few new drugs, Epidiolex & the new version of Keppra I think it is Brivaracetam. I need to do some more research as I did not like the s/e from all the drugs I tried.

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Replies to "@kayabbott I have not had any meds since about 2012, as they were making my seizures..."

@laura1961 I'm on low dose generic Keppra and don't have side effects or any of the issues I had with older drugs such as phenytoin (dilantin) that are metabolized through the liver. Keppra is metabolized through the kidneys, so best if one has healthy kidneys. There are new treatments that don't involve drugs, and clinical trials that your neurologist should be familiar with. Here are some links, in case any are useful to you: https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/news/seeking-new-treatment-for-generalized-epilepsy/mac-20592034 https://my.clevelandclinic.org/health/diseases/atonic-seizure https://www.epilepsy.org.au/research/participate-in-research/