Hi @laura1961
I hope you had a peaceful Easter! 🙏
During the Easter holiday, I was reviewing my notes from my appointment with Dr. Alejandro Scaramelli and the materials sent by the British Hospital in Montevideo about their keto diet center. As he emphasized, the success of this treatment depends largely on close follow-up. Here is an excerpt from one of those documents:
"This is not simply a diet, but a metabolic therapy in which the brain's usual fuel is replaced by an alternative one — ketone bodies. They produce a state called ketosis, which must be sustained continuously, and it is this that leads to better seizure control. The treatment is rigorous, requires a series of careful steps, and must be carried out by a multidisciplinary team specialised in it," explained Dr. Scaramelli. "It is an established treatment, universally accepted, and increasingly used in developed countries for its high efficacy."
During my appointment with him, he mentioned Dr. Ingrid Scheffer — an Australian neurologist and epileptologist — with whom he apparently had contact during the development of the British Hospital Keto Diet Center. Researching her a little, I found that she is one of the world's leading experts in epilepsy, based at the University of Melbourne, the Austin Hospital, the Royal Children's Hospital, and the Florey Institute of Neuroscience and Mental Health in Melbourne, Australia.
It might be worth looking into her work and considering whether reaching out to her could be valuable for you.
Wishing you the best of luck!
Chris