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neuropathy and spongy feet

Neuropathy | Last Active: Apr 2 5:31pm | Replies (21)

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John
How long have you been experiencing these symptoms?
Are they fairly stable or progressively getting worse?

Thank you

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Replies to "John How long have you been experiencing these symptoms? Are they fairly stable or progressively getting..."

@positivehealth - My numbness/tingling symptoms started in my toes in my late 40's and I didn't think it was worth getting a diagnosis (my bad) because the doctors told me there were no medications to treat the numbness, only the pain. Then in 2016 (age 72) with the symptoms progressing into my legs just below the knees I decided I needed to have a diagnosis. I went to Mayo Clinic Rochester and saw a neurologist, had the nerve conduction tests along with a physical exam and other labs and was diagnosed with idiopathic small fiber peripheral neuropathy. And, just like my previous doctors was told by the neurologist there are no medications to treat the numbness. That's what brought me to Connect which I am forever grateful. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

I still have the numbness and some tingling but it does seem like the progression has been slowed down or possibly stopped as I do have a little feeling returning to my feet but each day has a challenge of it's own. I do think learning as much as you can about the condition will help you navigate this awful stuff and live as best you can each day.