@janeilene I’ve decided that perhaps, I need to have a geriatrics physician, as my primary care provider, because, I’ve gotten nowhere with the DO, family doctor, that I have assigned to me, at a clinic, where a secretary sets up a Medicare Wellness visit once a year,’where I’m lucky to see my Doctor for sbout 10 minutes! I had lacunar stroke symptoms, Chronic Inflammatory Demyelinating Polyneuropathy symptoms for 2 years, or so, and didn’t know it, because I’m not a medical person, and had no idea. When I tried to discuss symptoms that were, or had been bothering me, like the loss of balance, falling, walking and tingling/numbness in my feet in hands, that was getting worse, neither my neurologist, nor primary care provider, addressed those issues, and had a wait and see attitude. My primary care provider was so rushed for time, this year, where his patient visits, are timed by the administration, that he only had time to check my breathing with a stethoscope. There was no time to discuss any symptoms that I was having. Anyway, my neurologist retired last year, and my new neurologist is doing a great job, in helping me figure out all the problems that I have been having lately! Thanks for your support!

@janeilene
I am sorry for what you are going through. I completely understand. It is the entire way the medical world is set up. I went through this with two primary doctors telling me I have a concussion and everything is normal. I was given the wait-and-see order. After seeing the third one, I finally got a General Neurology referral because of my severe TBI with a two-week coma history.

I was hopeful when seeing all of these specialists, but I had to advocate big time for myself because I was being treated like a cow, herded through the system. I understand medical providers have a list to follow through with patients that come in, and it works for 80% of the population. The disappointing fact is that for the 20% that it doesn't work for, they are told it is anxiety, etc.....

I am currently seeing the right specialists, but feel like no one is actually listening to me or looking at me as an individual, a complex case where normal procedures don't work. Mayo Clinic in Rochester is supposed to be the #1 rated in the world for neurology. I know if I had gone elsewhere, it would have been worse. All I can say is don't lose hope because I am hoping my particular case will help to change the system.

If you ever need someone to talk to, I am here.