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DiscussionAnyone on VYVGART Hytrulo, a new treatment for CIDP?
Autoimmune Diseases | Last Active: Apr 30 1:11pm | Replies (89)Comment receiving replies
Replies to "I have CIDP and am considering trying Vyvgart Hytrulo. Had a relapse a year ago and..."
@mamaskids07 I started Vyvgart infusions in June 2023 then switched to Vyvgart Hytrulo later that year due to vein problems. I go to a clinic where a nurse gives me my injection. My schedule is 4 weeks on and 4 weeks off. I have had good results with Vyvgart other than somewhat weaker legs. For the past 8 months I have had reoccurring uti's. I have taken numerous antibiotics with no results. At my last video visit with my neurologist he suggested this may be the side effect of Vyvgart. I am beginning to think he may be right. The soonest I can talk with him again is in early June. I want to explore this further - maybe asking about the dosage.
Since I have had good results with Vyvgart I don't like the idea of changing medications unless really necessary.
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@mamaskids07
Not formulated for CIDP, it was formulated for MG but sometimes works for CIDP. I’m on weekly IVIG of Privigen and function normally. The shots was sold to me as being able to maintain me at my current level which would have been pretty good. Tried it but by my four dose was in a wheelchair. Took me four weeks of back on IVIG got get me back walking.