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Is anyone taking cabozantinib (Cabometyx)?

Neuroendocrine Tumors (NETs) | Last Active: Mar 30 6:02pm | Replies (9)
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Profile picture for zacharycat @zacharycat

@kjstein Thanks for the useful info. Another question is - Are the radiation protocols after Alpha treatment the same as for the lutetium PRRT?

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Replies to "@kjstein Thanks for the useful info. Another question is - Are the radiation protocols after Alpha..."
kjstein | @kjstein | Mar 30 1:11pm

@zacharycat
Similar, but seems a little less strict this time. They seem focused on bodily fluids care and caution, rather than 'giving off radiation" after treatment. My impression was that things were more relaxed this time. Even more important--at least for me the fatigue after treatment was much less (especially days 1 & 2!), and I have been feeling completely 'normal' after the first week. My blood work looks pretty good too--a small drop in RBC count but hemoglobin holding steady. Will post again later this week after treatment 2 on Wednesday.
Thanks Tom for tracking down the clinical trial info!

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