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DiscussionDid anyone go through a stem cell transplant? Lymphoma
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Aug 6, 2017 | Replies (16)Comment receiving replies
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I am feeling better. I am still able to work but I am a bit slower than I use to be. As for my Lymphoma it isn't causing any serious problem now. I don't have cold chills or night sweats. POEMS is my primary issue. My feet at one time look like balloons due to POEMS. I have issues with bone ache, muscle ache and Neuropathy. No one can say if the Neuropathy is caused by the disease or the Chemotherapy used to treat POEMS. Dr. Sher in Jacksonville is overseeing my case. I know of no one else that has both disorders: POEMS and non-Hodgkin's Lymphoma
@craigkopcho, I would like to add my welcome to welcome to Kanaaz's. Thank you for sharing your experience with POEMS and a transplant. You may find the following post from the Hematology Mayo Clinic Connect Page an interesting read:
POEMS: An expertise in the rare leads to a rare opportunity, http://mayocl.in/2tijRi7.
@craigkopcho, it is not often you hear that lymphoma is not the primary issue. If you don't mind sharing, would you share with us how your symptoms of POEMS are doing post stem cell transplant? How are you feeling?