@panorman3
My husband's tumor was found in 1995 between the illeum and bowell. 7 of 11 lymph nodes were malignant. 1/3 of his colon was removed. At that time, there was nothing they could do and sent us home. He lived a very normal active life. December 2022, we found out that the tumors had spread throughout his skull and body. He started Lanriotide in January 2023. The week of his shot, he isn't really hungry and has a hard time making himself eat. He takes 3 papaya pills and 2 Zypan pills with each meal to help digestion. Scans in October 2026 showed no increase in size or number of tumors. Other than not begin very hungry, he has minimal side effects. We are thankful for all of the NETS doctors at Mayo and that he continues a very normal life. We pray for all of the NETS survivors we have met on this Connection It is a tough but doable journey.