Theresa, (@windwalker), A question:
Why is it important to see both a pulmonologist and an Infectious Disease doc?
I am a bit confused as to who will help coordinate my care. (My primary care Dr? Pulmonologist? ID Dr?)

I am in Lexington, KY. The University of Kentucky Medical Center does a lot of research and is considered to be a great place for rare or unusual diseases. I called last week to see if they had an I.D. Dr. I could work with and unfortunately they are booking pretty far out because of a shortage if ID docs right now. May end up having to go to Louisville. Dr. Escalante at Rochester Mayo recommends starting Big Three in the next 2-3 weeks. Best, Carolyn