Hi Pennycurious1! I can relate! I’m dealing with the same issues. My allergist wants me to see my neurologist to see if they think my neuropathy is causing my MCAS symptoms.The both conditions are overlapping.
I’ve been feeling all alone. I have symptoms of MCAS. They said they won’t give me an actual diagnosis yet?? I have High PGD2 my tryptase was low but I was not having a flare at the time. I have reactions to several foods different smells, things I touch, many medication’s, etc. etc. I have flushing itching heart, palpitations, gut problems,muscle and bone pain throat irritation. It feels like somebody’s crushing my teeth, near syncope episodes, numbness and tingling head to toe… utterly debilitating.. I suffer every day with so many triggers, so many reactions. I’ve been feeling alone and not thinking there’s anybody out there going through what I’m going through. It’s hard to explain to people what you’re dealing with. It’s hard for me to comprehend. This is all new to me. I think I’ve had MCAS for years, but just a mild case of it. I would have muscle pain, joint pain, near syncope and get reactions to medication’s. I thought it was just my neuropathy and just being allergic to certain medications. I was like that for years. Within the past two years, I’ve been under a lot of stress and lack of sleep. One day I just got a bad allergic reaction to something I’ve eaten before. I noticed I was getting reactions to several foods that I had eaten before. When I looked up all my symptoms, it pointed to MCAS. Since I’ve seen my doctor a couple of months ago, I’ve been experiencing the itching gastrointestinal issues which I didn’t have before so I feel like it’s progressing. i’m so glad I’m here. Sorry for the long post Thank you all!!