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Travel & timing after local recurrence
Pancreatic Cancer | Last Active: 3 days ago | Replies (10)Comment receiving replies
@bblz
I would second all that Mfrancis wrote. It sounds like you all are accomplished travelers so you may know this but absolutely read small print on travel insurance. I am a stage 4 patient since 2021, on and off chemo, trials, etc. a few months NED then a reoccurrence. My bike trip to Chile in November had to be cancelled. I took MONTHS to get $$ refunded. All good at Delta but the trip-another story!
I noted you will do CA19-9 every two months? Hopefully you meant every two weeks as I do. It’s about the trend, not one reading. Also, pls ask for the Signatera test. It will alert you on circulating cancer DNA, even when no tumors can be seen.
We too are pondering a safari in Sept to celebrate a big milestone!
Replies to "@bblz I would second all that Mfrancis wrote. It sounds like you all are accomplished travelers..."
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@gamaryanne it's heartening to hear that you, too, are considering a big trip. Hope it works out well for you!
My husband's doctors feel that at this point, it doesn't make sense to track CA 19-9 more frequently. He will have 5 days of MRI-guided SBRT, and we've been told that that treatment is likely to keep his CA 19-9 elevated for 1-2 months due to the inflammation/ irritation caused by it, so no actionable information would be gained from CA 9-9 tracking until 2 months later. And since this is a local recurrence that they hope to address with the radiation, they don't plan to track CA 19-9 more frequently (unless/until they find something on the ground very--month CT scans). I'm sure things will keep getting adjusted as things change with his disease.
Thanks for writing.