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Migraines & worsening symptoms
Headache & Migraine | Last Active: Apr 11 9:26pm | Replies (5)Comment receiving replies
Hi Max,
I'm so sorry that you are having such terrible symptoms! I hope you can be seen by someone who understands the complexity of your situation soon. That must be very stressful to live with all these symptoms. If you could get to the Mayo Clinic they are the best!
Have you looked at the side effects of your medications and any vaccinations or treatments you may have had? That could possibly give you a clue to some of your issues. Also you mentioned brain fog. My husband had brain fog when he had lung cancer. We found after doing some research online that Gatorade helped brain fog. He tried it and the brain fog finally went away. He also drank a lot of water and that always helps your body. Drinking a lot of water also helps spasms in your legs.
One positive thing about your stiuation is that you are young. Only 23! We heal better when we are younger. I'm 79 and have noticed how I don't heal as well at this age as I did at age 23.
One thing that really helps is prayer. God helped me and my husband a lot when he had lung cancer. Just talk to God like he is your best friend and he is! After all, he made you and he can fix you! I'll say a prayer for you also.
Please keep us informed on how you are doing. I wish you the best.
PML
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@pml Hello! I'm sorry for the super late reply. This comment genuinely helped me so much. I've been drinking gatorade and it helps my mind and body a lot! The brain fogs and jerking have gone done since I've started that. Your encouragement really helps, and I appreciate you sharing your faith and prayers with me! It gives me lots of hope.
I also wanted to post an update to this thread. I reached out to a relative for help with getting appointments and it's been a life saver. I got to see my neurologist that I had already been seeing for my vestibular migraines and they were able to give me medicaton for migraines. I'm only taking preventative medication so having something for these new level of migraines helps a lot. I'm also getting an MRI soon and if nothing comes back from that, I'll be getting an EEG (both a 30 minute one and seperate a 72 hour one) to test for seizure activity, which is likely what's going on when I'm unable to move. I hope the results from the MRI clear things up though and that I get the help I need for this.
I did have a fall right after I saw my neurologist unfortunately. I fell down in the bathroom that night and was stuck for around 25 minutes, but it felt much longer. I was aware and awake the whole time, but I couldn't move my body. I couldn't even blink or look around with my eyes. Every once in a while I'd have about 15-30 seconds of being able to barely move where I would move my head slowly to look around the room, try to readjust myself so that I could eventually get up, and I would groan, but I don't quite remember why I was trying to make noise. I remember a part of me saying "What's taking so long? Just try harder and get it together, you're making this up" in my head the whole time I was unable to move. Eventually the groaning caught attention of my partner, who was resting at the time. She helped me up and feel better and comforted me.
Also not sure how this got moved to mental health and the title change? I know some of the symptoms are about my dissociative disorder but most of these are neurological and related to migraines / headaches / seizure. I'll see if I can update the post to move it back but I don't want to cause problems with the forums.