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eileene7 avatar

Sibo treatment, long term success??

Digestive Health | Last Active: Apr 2 2:34pm | Replies (28)

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Profile picture for hallward @hallward

I have yet to find any medical provider who was of much help. What has helped me is the FODMAP diet. I've done it on my own using a lot of on line research. I'm now starting to slowly add foods back in and having a lot of success. One thing I didn't know and hope others do is that OTC meds like Prilosec can be a factor in developing SIBO. I had been taking Prilosec for quite a few years. I stopped cold turkey once I learned that and I wonder if that has helped me. Unfortunately a lot of us really feel we are on our own with SIBO. My insurance won't even cover a nutritionist.

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Replies to "I have yet to find any medical provider who was of much help. What has helped..."

@hallward
I was on Prilosec for many years. After having para esophageal hiatal hernia surgery a few months later they put me on a different PPI because of intestinal metaplasmia. I was so upset. I had to weight out the pros and cons with the Drs. I feel like it’s not a win situation either way.

@hallward same with my coverage and the GI dept suggested a nutritionist. The very few I have found in my area aren’t taking new clients.

@hallward
I've been lucky to have a gastroenterologist who ordered tests (colonscopy, endoscopy w/biopsy, MRI defocography, SIBO breath test) and to have insurance that paid for them and also a course of Xifaxin (expensive drug). But, yeah, we're on our own. We're learning along with the doctors. I will say, though, that even since summer 2024, when everyone with SIBO was basically being diagnosed with "IBS," I've seen a big increase in information about SIBO on doctor/medical sites. But it will all be trial and error and essentially, self-doctoring. I've thought for a long time that what Western (or at least US) medical care is good at is diagnostic tests, but not really "care." But those diagnostic tests can be very informative and useful. And yes, do have a look at any supplements and medications you are taking that might be contributing to symptoms.