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Is anyone taking cabozantinib (Cabometyx)?
Neuroendocrine Tumors (NETs) | Last Active: Mar 30 6:02pm | Replies (9)Comment receiving replies
@kjstein Outside of a lung infection I have the same effects from the Cabozantinib.
Was the clinical trial something you found or did doctors at Mayo recommend you for it? I am not a Mayo patient but would travel to take part in such a trial. My doctors don’t really notify me of these things though.
Replies to "@kjstein Outside of a lung infection I have the same effects from the Cabozantinib. Was the..."
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@zacharycat
My oncologist is at Mayo Arizona and he recommended the trial to me. My other option was to do 2 more treatments of the original PRRT which I would have done. I believe there is a site that lists open clinical trials, maybe on the NETRF website. I was told there are currently several trials of the Alpha PRRT. Good luck finding one. I’ll see if I can find the reference in my files tomorrow and will post if I find it.