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@ruthadler Just so you know... i had DCIS in situ, Stage 0 grade 2 (intermediate), no BRCA gene mutation, ER-, PR-, and after the pathology came back from my lumpectomy, I was Stage 1a, grade 2, HER2- 1+ TNBC with microinvasion. I had a 2nd surgery to determine if lymph node involvement.. that was negative thankfully. So it did spread apparently in the time from my biopsy to lumpectomy.. about 5 wks... Now whether the biopsy just didn't get the microinvasion part or not I have no idea, but it had still broke through. My oncologist told me had they found this a couple of months later, I would be talking a different situation and different treatments.... I sometimes think the radical mastectomy that I see on all the support groups and chats is over treatment... but I myself was ready for a DMX and my surgeon explained to me a lot of things about how (in my case) it wasnt necessary. It also has to do with the recurrence rate. I dont remember what she told me the % was, but it was low. So Im good with lumpectomy. However, If there is a recurrence... I will definitely be leaning more toward a mastectomy.
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@birdie60 i feel your anxiety..and agree with your long-term plans if recurrence... I just got biopsy results few weeks ago, said stage 0, DCIS, in situ PAGETS HER2(3+), ER and PR positive too... a general breast surgeon who did the biopsy wanted to do the surgery last week...but she admitted she had little experience with Pagets, offered me no consultation, seemed not to have a team that worked together for pagets/rare breast cancers...got no review of pathology, no treatment plan, she just said schedule a lumpectomy and then do radiation..made me feel like they were rushing me, and gave me no options, no knowledge, no time... so I opted to visit Sloan Kettering (SK) in NYC last week, which specializes in rare breast cancers including Pagets..the surgeon was so patient, so thorough, explaining pathology, treatment plan, a consult date with a radiologist, surgery date May 7th, and post surgery...SK said i could do my radiation in John Hopkins baltimore, since i live in MD....then also got a 3rd opinion from Cedar Hospital Breast Cancer center in LA, and all 3 providers suggested best to do lumpectomy and radiation..but at least SK explained my option of a mastectomy would allow me to avoid radiation..and the low risks that go with it... i did choose SK as my provider last week, BUT now, I fear my cancer is growing very fast, and it will not be Stage 0 when they finally operate in May (about 10 weeks after biopsy ugh) ...even though my SK surgeon assured me that my cancer was not growing so fast...but I am worried I will regret not having the cancer removed last week even though the general breast surgeon offered me nothing other than a quick surgery.. so i can empathize with your concern...but me too, if mine comes back i will do a mastectomy too...wishing you the best in your recovery...