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Profile picture for ionashepherd @ionashepherd

Hi, our now 42 year old daughter was diagnosed with FND 2 years ago. Until she got the diagnosis, she thought she had MS, seizures, epilepsy, Guillain-Barre, and a plethora of other scary diseases. She had a one and a half year-old and 6 month old at the time. With her diagnosis came some relief, which reduced a lot of stress immediately. She still has times where it flares, usually when she’s tired or under stress. She does believe that Neuro feedback helped her a lot. She also makes use of noise-canceling headphones to help block sound when it gets to be too much. She now has three children. Overtime it has become better. She did live in Tennessee for about four months and found that the lightning storms at night, flashing through the bedroom blinds, would cause seizure-like activity in her brain. She’s happily back in California.
Strange things like that still happen, but because she knows what’s causing it, it’s been easier to deal with. She has to come up with interventions that help her to get through those flares.

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Replies to "Hi, our now 42 year old daughter was diagnosed with FND 2 years ago. Until she..."

@ionashepherd
I was diagnosed with FMD/FND 15 months ago. Like your daughter I react to unexpected noise and sound. Noise canceling headphones do help, but you can't wear them all the time. My neurologists tell me there is no cure, however I was prescribed Gabapentin, which I take three times a day and that has made a major difference to my everyday life. Perhaps something to discuss with her doctors.