Hello to all. I am like carolyn who has just been told that i have Mac. My pulmonologists sent me yo an infectious disease doctor who informed me of what treatment they use and how bad the side effects are. She left me with information to study and gave me a doctor name at duke for a second opinion. I live in North Carolina so duke is close to me.
Biggest question do i wait for treatment or not. My fear that it will get worse. I will meet with her in January to discuss what to do.
I have bronchiectasis-tree in bud nodules in right lung and left
I get ct every 6 mo bec i have nodules that show up and then they disappear. My lung doctor has been telling i have mac but sputum and bronchoscopy would not show up but now 2 sputum have shown positive for mac.
I just found this forum and the more i read i just don’t know what to do.
I had neck cancer 5 yrs ago stage 4 had chemo/radiation. I believe this created environment for mac. I also am very concerned with infection in my lungs creating possibility for cancer.
I am going today call duke to get an appt.
I have been researching this mac for days and i just keep praying i get guidance on what to do.
If you could point me to more research I would appreciate your comments.
Miriam

I was just wondering if Mayo Clinic takes Medicare. I was there 16 years ago for back surgery and now also have MAC but heard that they do not take Medicare anymore. Is this true?