@katemn I
go to Dr. Jack Leventhal. Katherine, you may have been one of the patients that
was severe enough to require the BIG THREE, also, you may have been put on those
years back when they thought that was the necessary standard. But, do ask
him/her what their current thoughts are on using the BIG THREE. I think
someone on our forum saw Dr Askamet recently and she was confused because he did
not want to treat hers just yet. Wanted to wait and see. Remember she was upset
about waiting for fear of the infection getting worse and damaging lung tissue?
Keep in mind Dr Leventhal said he now treats MAC patients with
 individual treatment plans because there are so many variables. I look
forward to hear what your Dr's take is on this.
 

Yes, the Mayo in JAX.
 

@windwalker, Terri .. you could be correct about me .. because not only was it 2011 (maybe prior to the "new thinking") but also because this wonderful Mayo Connect did NOT exist with it wonderful sharing of information .. I was so fearful of going on the antibiotic treatment that I did not go on the antibiotics until I got a SECOND very serious mycobacterium called: MYCOBACTERIUM ABSCESSUS SUBSPECIES M. BOLETTI ISOLATES .. that creates abscessus in the lungs .. very difficult to get rid of .. took thirty months. So I am REALLY happy to get your information .. will confirm it with the Rochester info .. AND will update my File Cabinet so we can keep our Newcomers up to date with the newest info. That is VERY important that we do NOT disseminate outdated or incorrect info on our Connect .. we must CONSTANTLY keep each other updated so we HELP each other .. "Do no Harm"! Thank you for sharing! Hugs! Katherine

@katemn There
is hope for all of us.
 

@katemn Katherine,
I also wanted to add that when I told Dr Leventhal about how many people on this
thread get put on those BIG THREE antibiotics at their first diagnosis; he was
shocked.
 

I have Mico and pseudomonus. Every time I go to the ID doc she has me leave a sputum and then nevet calls me back. Her explanation is that its "colonizing". I never called her back after the last sputum. Now I'm coughing so bad! My head hurts when I cough . both infections are resistant to cipro and other antibiotics. And i cant take tobramycin, allergic to it.

Hi, did you ever follow up on that last sputem to get your results? How are you doing now? Terri M.

I was not able to produce anything for the second time with the induction.

Does that mean that you are not infected much by your MAC?