@congersdub
I went to Mayo in Rochester a few weeks ago for painful lipomas. Two dermatologists had no recommendation and did not mention Dercum's Disease. They were quite unhelpful. I later found out about Dercum's online, and it matches exactly my symptoms. I have been working with an occupational therapist to stimulate lymphatic drainage in the areas of the lipomas, and I've had a significant reduction in pain (sometimes no pain at all). She recommends using a dry brush (brand Eco Brush) daily to stimulate lympathic drainage and that's working well. I've had two surgeries, and that has only served to create scar tissue that impedes drainage. I feel for you.