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Has anyone had to deal with a functional neurological disorder?
Brain & Nervous System | Last Active: 18 hours ago | Replies (58)Comment receiving replies
@jaberg Thank you for your reply, and I sympathize with what you are also going through.
1. What treatment plan, if any, are you on or that has been offerend to you?
2. Have you spoken with anyone else about our respective similar symptoms, and if so, what have you been told?
I went back to read some previous messages, a fellow (who wrote three years ago on Mayo Connect) said that FND is not a psychologicial issue, it is a brain issue - that FND is due to a problem with the functioning of the nervous system - the result of FND is that the brain had been rewired (from trauma) - FND is simply a result of this rewiring - brain hardward is okay, it is the brain software is not.
3. Have you heard this?
I greatly appreciate your comments on Mayo Connect.
Replies to "@jaberg Thank you for your reply, and I sympathize with what you are also going through...."
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@whs2026 m
I have no treatment plan. I am just shy of 7 months post-2nd concussion. My brain rewired after the first accident, and I had my own routine that helped me function. Actually, I got up at 4 am to run 6 miles every morning to start my day. Exercise and a healthy diet was huge for me. Now, whenever I move my neck, which is all the time, I have symptoms. I tried PT and it didn't work because the more I pushed, the more my brain failed me, increasing my diastolic blood pressure to dangerous rates. I have also been diagnosed with Autonomic Disorder and POTS. I am not sure what is in store for me next. It is hard for me to deal with because my lifeline, running, has been cut off. I'm trying to understand all of my diagnoses and possible treatment plans, but nothing has worked so far. I am waiting on approval for the 16-day program at the pain rehab center. I appreciate the responses I have gotten and want anyone who reads this to know that it is hard, and it feels never-ending, with no hope to return to prior concussion status. Or at least it is a low percentage that I will be able to run my 6 miles in the morning again.