Any successful Stoma reversal experiences? What is the timeline?

Posted by sacul2 @sacul2, Feb 27, 2025

Is there anybody out there that actually had a good or easy stoma reversal? All I see are horror stories that three months later major problems. Six months a year later etc. etc. I was led to believe that 2 to 4 weeks a could have a burger and a beer with normal bowel movements. No creams or potions or adult diapers.

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Profile picture for adlib071 @adlib071

@catbaloo76 The reversal surgery is supposed to be a lot easier, though must take it easy to heal…at least 6 weeks with no lifting over 10 lbs. My surgeon said they just enlarge the incision at the stoma site and they “ pull up the intestine, sew it back together and poke it back in.” Then suture incision. I was happy to hear that….I just pray my colon will work properly (I only had about 6” removed where diverticulitis was in lower left side. However, I had a prolapsed rectum that was narrowed to where little could pass through so they removed it (which shocked me!). I pictured spending the rest of my life in the bathroom. But my surgeon repaired the muscles down there and told me the muscles are even more important. She had to put 100 stitches in there (that is why my surgery was so long instead of 3-5 hrs.). That relieved some of my fear (muscle repair). Aside from that, she removed a fistula and my appendix! (I wonder if there’s anything left in me? LOL). She told me she had never seen so much inflammation. I had robotic surgery and the amazing thing was that I had absolutely NO PAIN from the 10-hour surgery!! My pain was 4 months before surgery. I remember waking up in recovery and my first thought was that The pain was gone! Right now, I am mostly upset about losing my hair. I feel so unattractive and depressed.

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@adlib071 I understand about your hair I went through that for 6 months I would not even wash it I would put it on top of my head for at least a week then wash it and my hair is really long even though I was going to have to cut it because of it being so tangled,but a beautician was able to untangle it I'm worried this is going to happen again ,I wonder if 13 months will be to long to have my reversal my first surgery was last March but not having this reversal done 13 months later I'm just really undecided just know your hair will stop falling out and will be beautiful again.

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Profile picture for catbaloo76 @catbaloo76

@adlib071 I understand about your hair I went through that for 6 months I would not even wash it I would put it on top of my head for at least a week then wash it and my hair is really long even though I was going to have to cut it because of it being so tangled,but a beautician was able to untangle it I'm worried this is going to happen again ,I wonder if 13 months will be to long to have my reversal my first surgery was last March but not having this reversal done 13 months later I'm just really undecided just know your hair will stop falling out and will be beautiful again.

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@catbaloo76 Thank you for your encouraging words! I needed that. I had a thick head of hair last summer before I got sick! I especially noticed it falling out after my surgery in Nov. i gently wash my hair once a week but it is in the sink, my hair brush, on my clothes and comes out if I run fingers through it. Maybe yours wont fall out again since you have had a year to recover. I think reversal is a much shorter procedure (but a long recovery as far as resting, no lifting etc. Maybe because the wound is at the surface instead of deep inside?

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As a former hairdresser I can say that hair reacts to any tramatic event such as surgery I had curly hair prior to surgery and now what has returned is very straight Some hair has returned but not back to its original thickness and its been two years However I am 87 and I am sure some of the loss is due to natural aging I am just glad to be alive and enjoy my great grandson who is two There are always wigs if needed

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My ileostomy take down (reversal) was scheduled for 6 months after placing it. In the end it was done 7 months after. My abdominal incision was re-opened. I was in hospital for a week, mostly because it took that long for my bowels to start functioning. Had they been more co-operative, I think I'd have been released sooner!

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Oh gosh, I don't want to hear horror stories after reversal! yikes! I just had reversal done on Monday (Mar. 9) and was able to go home on Wednesday. I woke up 4 am Tuesday (at hospital) with uncontrollable diarrhea and it was awful!! Lasted about 6 hours and finally stopped. Next day, I got to go home and things started to "thicken up" somewhat. No catastrophes, was able to get to the toilet. (That first "splash" was music to my ears! LOLOLOL!!!) Anyway, elimination is different, but it's not bad. I just have to stay in tune with my body and learn how it works now. I think I will be fine. I am SO HAPPY the ileostomy is GONE!!

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Profile picture for adlib071 @adlib071

Oh gosh, I don't want to hear horror stories after reversal! yikes! I just had reversal done on Monday (Mar. 9) and was able to go home on Wednesday. I woke up 4 am Tuesday (at hospital) with uncontrollable diarrhea and it was awful!! Lasted about 6 hours and finally stopped. Next day, I got to go home and things started to "thicken up" somewhat. No catastrophes, was able to get to the toilet. (That first "splash" was music to my ears! LOLOLOL!!!) Anyway, elimination is different, but it's not bad. I just have to stay in tune with my body and learn how it works now. I think I will be fine. I am SO HAPPY the ileostomy is GONE!!

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@adlib071 , congratulations on the first "splash" and a successful reversal. How is recovery going?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@adlib071 , congratulations on the first "splash" and a successful reversal. How is recovery going?

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@colleenyoung I feel GREAT! Just healing and learning my "new normal". Colon working fine. Having no 'accidents', but need to do kegal exercises to help strengthen muscles (since my rectum was removed due to extreme narrowing and inflammation). I had muscle repair too. But I have no regrets about reversal surgery.

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I had a volvulus (twisted colon--not cancer), had to have about half of colon removed, had ileostomy for 6 months, then it was reversed. While I wish the volvulus had never, happened, one advantage of a shorter colon is that I'm never constipated--a definite benefit. I'm sure some people don't have a good experience with reversal, and it does take time (maybe 2-3 months) for your insides to get used to the reversal. But I'd never choose to go back to having an ostomy!

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Profile picture for peggydobbs @peggydobbs

I had a volvulus (twisted colon--not cancer), had to have about half of colon removed, had ileostomy for 6 months, then it was reversed. While I wish the volvulus had never, happened, one advantage of a shorter colon is that I'm never constipated--a definite benefit. I'm sure some people don't have a good experience with reversal, and it does take time (maybe 2-3 months) for your insides to get used to the reversal. But I'd never choose to go back to having an ostomy!

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@peggydobbs Same here! I had a 6” colon removed/resection (diverticulitis) and fistula removal in November. However, they got in there and I had severe inflammation and a prolapsed rectum, which they had to remove, along with my appendix.🥴. I had a temporary ileostomy so my colon could heal. On March 9, they did my reversal. I am SO HAPPY to be rid of that bag! I am healing now and getting used to my new normal. In spite of rectum removal, they repaired my muscles down there and so far, everything is going well.

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Profile picture for peggydobbs @peggydobbs

I had a volvulus (twisted colon--not cancer), had to have about half of colon removed, had ileostomy for 6 months, then it was reversed. While I wish the volvulus had never, happened, one advantage of a shorter colon is that I'm never constipated--a definite benefit. I'm sure some people don't have a good experience with reversal, and it does take time (maybe 2-3 months) for your insides to get used to the reversal. But I'd never choose to go back to having an ostomy!

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@peggydobbs can I ask your age?? I was scheduled for a reversal in March but was afraid to o have it done because of my age I'm 76 was 75 when I had a perforated bowel I almost died and scared to have the reversal the Dr.has to open me up again.

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