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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 3 days ago | Replies (853)

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@creedyfly

In July 2019, I was diagnosed with a Myxoid Liposarcoma in my right thigh (just above the knee). I completed the five weeks of radiation and was impressed with the professionalism and individual care provided by the radiation oncology department. Other than fatigue and the burn appearance to the leg (that really appeared two weeks after the completion of radiation), the radiation had minimal other side effects. The radiation worked well to minimize the impact of the tumor prior to surgery. Now two months following surgery (that was very impressively performed by the Mayo teams), I wonder how others with invasive leg surgery (particularly if there are others with functional flaps) worked through rehab. Chris

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Replies to "In July 2019, I was diagnosed with a Myxoid Liposarcoma in my right thigh (just above..."

Welcome to Connect, @creedyfly. I'd like to introduce you to @kathythornjohnson and @godsgotthis, who also have myxoid liposarcoma. I hope they will return to share experiences with you.

In the meantime, back to you Creedyfly. Have you started rehab? What concerns you about rehab with composite functional thigh flaps?