Why so few doctors know?… There are so few docs in neurology & likely fewer in research. Treatments generally require millions of dollars for research, then again for clinical trials. Neuropathy affects primarily old people, fewer than a dosease like cancer or spinal disorders….and now our government agencies are hatcheting many research programs. So I understand the lack of interest & knowledge.
Fortunately my neuropathy (feet only) is relatively mild & very manageable with a few strategies. At rarer times it is maddening. I have wondered recently if acupuncture would be useful. After I read about something called “peripheral nerve dysfunction (which affects body temperature regulation & other systems) that seemed the next approach I’ll try.
I’ve done 1 course of Tx with a PT using a device called WYNBK (“win back”.) It’s not FDA approved or reimbursed by insurance (self pay.) I didn’t notice any improvement with the 1 course. But if I did 10? ($4,000) Who knows. I truly feel for younger people with this, and those whose neuropathy is more severe. Our bodies are such a magical mystery! I bet what we know is just the tip of a great iceberg. Best wishes to you.