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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Nov 8 5:59pm | Replies (840)

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@colleenyoung

Welcome to Connect, @rgotto41. I'd like to bring @superdave, @amd123 and @disneyrn who have experience with synovial sarcoma.

Rgotto41, we look forward to getting to know more about you. When were you diagnosed and what treatments will you have or have you had? Got any questions for us?

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Replies to "Welcome to Connect, @rgotto41. I'd like to bring @superdave, @amd123 and @disneyrn who have experience with..."

I had pharyngeal cancer in 2012. Surgery,chemo, and radiation. Now this new tumor in the same area and extending into my jaw. My surgery to remove the tumor seems to have gone really well. Now they suggest a 6 week followup course of radiation (proton) to boost the probability of no recurrence. I’m 78, widowed, already somewhat limited by aftereffects of the earlier treatments. I’m trying to balance the additional insurance against recurrence against the reduced quality of remaining life associated with another radiation series. It’s a guessing game I know but I’m leaning toward foregoing the radiation in favor of making the best I can of time remaining.