Hi, Sorry to hear of your condition. If you are not putting yourself at risk by delaying surgery to do so, a second opinion can give you another perspective that may reinforce your current course of action or offer other options, and I think it's especially important with rare cancers. It's worth a phone call to Mayo. All the best to you on this journey.

hi @raeangel319, welcome to Connect. I'd like to introduce you to @juzme88 and @biceto, both of whom have dermatofibrosarcoma protuberans (DFSP).

Should you decide to call Mayo Clinic for a second opinion here are the contact numbers http://mayocl.in/1mtmR63. If you have any questions about Mayo expertise and care, feel free to ask questions to @christine19 @jeffk and @deborahe. While they don't have the same type of sarcoma, they were all treated by sarcoma specialists at Mayo in MN.

Raeangel, when were you diagnosed? May I ask where the tumor or lesion is located?

When my laryngeal chondrosarcoma (less than 200 cases ever) was diagnosed the first opinion I received from one of the top 10 surgeons in this area was that I may end up with a permanent trach and maybe a feeding tube. I ended up visiting 5 other surgeons and Mayo was the only place that provided me with hope that they could remove all the cancer and maintain the majority of functionality. I strongly advise you to seek additional opinions and Mayo should be at the top of that list.