← Return to Pelvic pain, persistent diarrhea following surgeries: looking for help

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Profile picture for keirahaley @keirahaley

@grammato3 has great insights!

I’m so sorry you are being dismissed.

That happened to me too.

Sadly my understanding and experience is that you must raise hell and in my case even “lie” to get proper treatment. (Finding the right symptoms to speak of are like keys to unlocking passage to the right tests. As I was “too young” to have what I have, they wouldn’t look for it so I had to do this.) I was disregarded a million times until they would do the right tests. Have you had a pelvic ultrasound done? I would find a way to get one of those, (speak of the truth in your case and extreme cramping, bleeding, bloating, irregularity, blood in stools) or even pay for a private PET scan and /or full body MRI. Hang in there and fight for answers! We are with ya! 💛

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Replies to "@grammato3 has great insights! I’m so sorry you are being dismissed. That happened to me too...."

@keirahaley I can see where this would definitely be needed sometimes. It’s insane how they dismiss someone that knows what is happening in their own body! I think I have had a pelvic ultrasound 🤔 I know they did one to check my ovarian torsion and then when I was having pain again they did. If that is the same thing. Then they did the one for the gallbladder and I asked them to move it to the place that was actually hurting me and they wouldn’t. I knew it wasn’t my gallbladder but I went through several tests for that. I have joked about a test that can scan the whole body but you mention a full body MRI… is this a thing? I have read about some type of abdominal MRI and think I need one though. My next test is EGD and the HIDA last week was $615 co-pay and this one is $935…they killing me! I’m out of work and it would be ok if they would actually be figuring things out. My heart goes out to all of you in this situation 💛 I love food and would love to actually want to eat again!