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Anti-mag neuropathy

Posted by fsr @fsr, 6 days ago

Long standing mild sensory idiopathic peripheral neuropathy. Things changed rather quickly. In retrospect maybe not so quick. In any event, now anti-mag neuropathy. I know it’s kinda rare and just interested in knowing if others are out there.
Fsr

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Will in AZ | @allessio77 | 5 days ago

Hi, Yes I have antiMAG neuropathy. They tell me that a blood disorder is the cause of my PN. My antiMAG test came back off the charts! I am trying to comprehend whether the treatments for this disease is better or worse than having the disease. Did they tell you you have MGUS with Neuro implications or something else?

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fsr | @fsr | 5 days ago

Thanks for response. Told me mgus with anti-mag neuropathy.

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1 reply
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positivehealth | @positivehealth | 5 days ago
In reply to @fsr "Thanks for response. Told me mgus with anti-mag neuropathy." + (show)
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Thanks for response. Told me mgus with anti-mag neuropathy.

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@fsr
Hello
Did doctors recommend any treatment?
Rubituximab??
It is such a rare condition.
Hopefully someone who has been treated will give some insight as to their experience.

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1 reply
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fsr | @fsr | 5 days ago
In reply to @positivehealth "@fsr Hello Did doctors recommend any treatment? Rubituximab?? It is such a rare condition. Hopefully someone..." + (show)
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@fsr
Hello
Did doctors recommend any treatment?
Rubituximab??
It is such a rare condition.
Hopefully someone who has been treated will give some insight as to their experience.

Jump to this post

@positivehea

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fsr | @fsr | 5 days ago

Thank-you for response. Yes. In looking at published results and the real concerns associated with taking this, it’s not on my wanna do list.
F

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1 reply
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positivehealth | @positivehealth | 5 days ago
In reply to @fsr "Thank-you for response. Yes. In looking at published results and the real concerns associated with taking..." + (show)
Profile picture for fsr @fsr

Thank-you for response. Yes. In looking at published results and the real concerns associated with taking this, it’s not on my wanna do list.
F

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@fsr
Thank you.
Definitely real concerns!

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Moderator
Colleen Young, Connect Director | @colleenyoung | 1 day ago
In reply to @fsr "Thank-you for the info. F" + (show)
Profile picture for fsr @fsr

Thank-you for the info.
F

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@fsr, you may also be interested in these related discussions:
- Is anyone suffering with Anti MAG neuropathy? https://connect.mayoclinic.org/discussion/is-anyone-suffering-with-anti-mag-neuropathy/
- Anyone with Anti-Mag tried Rituximab treatment https://connect.mayoclinic.org/discussion/anyone-with-anti-mag-tried-rituximab-treatment/
- DADS-M Neuropathy with Anti-Mag Antibodies...anybody else? https://connect.mayoclinic.org/discussion/dads-m-neuropathy-with-anti-mag-antibodies-anybody-else/

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