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Anyone with Systemic Sclerosis or Scleroderma?
Autoimmune Diseases | Last Active: 3 days ago | Replies (27)Comment receiving replies
Truly hope you have good results from your treatments.
I also have CREST - multi system autoimmune involvement post COVID vaccine in 2021: chronic fatigue, skin thickening, joints stiffness, GI that feels like Irritable Bowel Disease. My Raynaud and scleroderma started in 2022, exactly 1 year post COVID vaccine.
Currently I am 14 months post stem cell transplant for scleroderma (done at Duke), on no medications, but considering going back on biologics due to progression and worsening of my multiple symptoms, including joints and GI.
There are multiple trials for new scleroderma drugs posted on the web at http://www.clinicaltrials.gov. Some are ongoing at John Hopkins as well. Hope, something will be getting approved soon enough so that we all can benefit.
Replies to "@taylor05 Truly hope you have good results from your treatments. I also have CREST - multi..."
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I thank you! It probably will get me being so aggressive and it's in 2
places now. Maybe more. I have a lot of the bad symptoms from Connective
Tissue Disease as well.. Much luck to you!!! Your risk increases with
CTD. Sleraderma and Sjögren's are the ones it increases the risk from. I
know something was going to get me in a couple more years anyway with
damage from them. Take care!!
Praying for you 🙏 ❤️
Nadine