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ShellyGrayWings avatar

The in-between life and death cancer

Cancer: Managing Symptoms | Last Active: 13 hours ago | Replies (54)

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Profile picture for mapleskoff @mapleskoff

Shelley, I'm much older than you, and I have felt many of the same things. I was diagnosed with two separate cancers a couple of years ago. Radiation seems to have taken care of the lung cancer, but the kidney cancer remains even though it has also been radiated.
I haven't cried, or even wept. I haven't asked "why me". Why? Because I'm now 84, soon to be a year older. And living "in between". I don't know what is happening sometimes. I seem to have a sharp knife living above my neck, and just waiting for it to slip down and end my life. It is a terrible feeling. Unless someone has been here they will never know what it feels like. You do! I enjoyed your writing, and my heart goes out to you, and the thousands of others living in "the in between".
My kids don't talk to me about it. They don't talk to me. My wife, who had a breast cancer scare several years ago, and had a lumpectomy seems to understand, but she isn't in my skin, is she?
I have kept my feelings to myself, for the most part. I have very good Oncologists who follow my cancer care. One even calls me to report on my MRI's. The big problem is that nobody really seems to care about ME.
Thanks for writing with your heart. You have taken a place in my heart, and shall be there always. I hope that the people that love you, and care deeply for you will try to understand. I will too.
I send you the best of wishes and hopes.

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Replies to "Shelley, I'm much older than you, and I have felt many of the same things. I..."

@mapleskoff
I’m so sorry you’ve had to carry this. Two cancers, radiation, the waiting, the scans, that sharp-knife feeling above your neck—I know that sensation too well. It’s a terrible, lonely kind of place, like holding your breath and forgetting how to let it out. You’re right! Unless you’ve stood here, you can’t really know what it feels like.

I’m grateful your radiation helped the lung cancer, and I’m holding hope with you about the kidney cancer. I’m also glad you have oncologists who are attentiveespecially the one who calls with MRI results. That kind of care matters!. And yet, I hear the ache underneath your response that nobody seems to see you in all of this. Not the patient, not the hospital file, but the man who has lived 84 years, who feels, who worries, who loves. That matters to me. You matter to me and I get it.

I’m sorry your kids don’t talk to you about it or much at all. That kind of silence can feel like another weight to carry. And I understand what you mean about your wife, she loves you, she’s walked near this road herself, and still she isn’t in your skin. Both things can be true at once her care and your aloneness.

Please don’t feel you have to keep it all inside. If you ever want to put words to the days that feel foggy, or the fear that sits like a blade, or the small, good moments too, I’m here to read them. You’ve already taken a place in my heart as well, and I’ll keep it safe. PLEASE BELEIVE.

Thank you for saying you enjoyed my writing. It helps more than I can say to know it reached someone who lives in this same in-between. I’m sending you steady wishes—for ease where it can be found, for clarity when the fog lifts, for moments that feel like yourself, and for people who can meet you where you are. You deserve to be seen, not just your diagnosis.

I’m thinking of you, and I’m grateful we found each other in this place. Please write again whenever you want. I’ll be here, listening with my whole heart.