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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 10 hours ago | Replies (804)

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@sarcomasurvivor

Hello,

I was diagnosed with high grade uterine sarcoma "NOS" in 2009. Had surgery, AIM chemo and radiation at local Illinois hospitals. Was screened for 8 years by my local oncologist, who then said I no longer needed screening as I had no recurrence. Now receive yearly screening at Mayo, a recognized sarcoma center, as sarcoma can reappear years after treatment. Mayo also refined my initial diagnosis to high grade undifferentiated uterine sarcoma. Blessed with good health for the previous 9 years, but now experiencing some apparent late effects of treatment.

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Replies to "Hello, I was diagnosed with high grade uterine sarcoma "NOS" in 2009. Had surgery, AIM chemo..."

@sarcomasurvivor

I am glad that you shared your story with Connect! How wonderful that you went to Mayo and received a refined diagnosis. I'm also glad to hear that you are following up on a regular basis. I find it difficult to believe when a doctor doesn't want to follow up with a cancer survivor.

Teresa