I have what they feel is Crest. A bit if all. Lupus numbers are very small. Thank goodness! I've had so many issues. Raynouds disease is bad. I got all this after covid vaccine in 2020. I do not take boosters since it was so bad in my opinion getting all this! Extremely tired, pain always because of Fibromyalgia that I have. I have small vessel disease and have had several ischemic strokes and they were not bad ones though in left and right hemispheres , I got back talking and balance issues. Sometimes it took about 8 months to regain things back. My Rheumatologist is in John Hopkins and he's such a great dr.. messages me all the time. I live about 2.5 hours away from there. I have antiphospholipid syndrome as well. So Hematologist is here for now. They just took photos of my chest , throat and pelvic Pet scan with radio active solution and I have cancer that has matasised 4.5 cm one in left lung and 2.4 cm one in pelvic area. They want a sonogram of my thyroid as it seems off.. Having this issue with all these connective tissue diseases makes whole team needs to help and its much more complicated to treat. If I have no good results from treatment I only have a few months to live. It's hard to deal with watching my PA daughter be devastated about it. My husband is great though. He is supporting and I'll do whatever my daughter wants from me as she has CT and stress can effect flares for her. She has autoimmune diseases as well. Different from mine..
Take care if yourself to all.