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Anyone with Systemic Sclerosis or Scleroderma?

Autoimmune Diseases | Last Active: Mar 28 1:04pm | Replies (27)

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@36yrswss
What kind of treatments did you have for scleroderma? What worked for you, and what are your current challenges, outside of incontinence?

Please share more of your scleroderma story.

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Replies to "@36yrswss What kind of treatments did you have for scleroderma? What worked for you, and what..."

@altabiznet
In 1992 I used methotrexate injections 2 years. I was so fatigued that I stopped the injections. I have Raynaud’s, so I take Nefedipine during winter months. It works great, no cold toes or fingers. I take Protonix for Gerd’s and raise the head of my bed. I chose not to take auto immune meds, and just treat the symptoms. I have thick skin and stiff joints. My GI track is affected. Swallowing problems have caused me to have several throat dilitations, Gerds, slow colon, and now rectal incontinence. I am a RN and left work on disability. I follow the Mediterranean Diet, as I am allergic to Soy. I read labels as Soy inflames my body and causes diarrhea and itching. Fresh and no processed foods are best for me.