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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 3 days ago | Replies (853)
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@christine19

Hello! I have a sarcoma in my liver, and possibly in my lungs: epitheleioidhemangioendothelioma! Whew!! 15 syllables! otherwise known as “E.H.E.”. Diagnosed in 2008, I have had two surgeries (one at Mayo in MN), one in Phoenix (where I live), and a debTACE (outpatient) procedure. I have always been asymtomatic, fortunately! I am currently under the care of AZ-Mayo Clinic’s Dr. Mahesh Seetharam, and I am very happy and satisfied inder his care.
Dr.

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Replies to "Hello! I have a sarcoma in my liver, and possibly in my lungs: epitheleioidhemangioendothelioma! Whew!! 15..."
Teresa, Volunteer Mentor | @hopeful33250 | Jun 15, 2018

@christine19 Hello Christine:

I see that this is your first post on Mayo Connect - welcome! I am so glad to hear of your good treatment for E.H.E and I'm pleased to hear that you have received such good care at Mayo. How fortunate that you have been asymptomatic. I appreciate your sharing your experience, we all learn from each other and you have shared some valuable information that might help others.

I look forward to hearing from you again.

Teresa

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Colleen Young, Connect Director | @colleenyoung | Jul 3, 2018

Hi @christine19
Welcome to Connect. I'd be interested in hearing more about your experience with DEB-TACE radiation treatment. I've been reading journal article about it online, but would like to hear more about the patient side of the treatment. What is it like? Are you finished with treatments or still getting them?

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