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Anyone with Systemic Sclerosis or Scleroderma?

Autoimmune Diseases | Last Active: Mar 28 1:04pm | Replies (27)

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Profile picture for 36yrswss @36yrswss

I began with localized Scleroderma in 1982. I currently have Systemic Scleroderma, Diagnosed by the Mayo Clinic in 2010. I Currently need a Gastroenterologist for Bowel incontinence. It seems impossible to get an appointment anywhere in AZ. Any suggestions on how to deal with the incontinence? Many Thxs.

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Replies to "I began with localized Scleroderma in 1982. I currently have Systemic Scleroderma, Diagnosed by the Mayo..."

@36yrswss

What kind of stool pattern do you have, diarrhea or constipation?
For frequent liquid stools, there are OTC anti-diarrheal agents, if this is the cause. Need to know the cause to choose the right treatment.

Here is a link to Mayo Clinic website:
https://www.mayoclinic.org/diseases-conditions/fecal-incontinence/diagnosis-treatment/drc-20351403

@36yrswss
What kind of treatments did you have for scleroderma? What worked for you, and what are your current challenges, outside of incontinence?

Please share more of your scleroderma story.