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Autoimmune Diseases | Last Active: 4 days ago | Replies (57)
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Oh My Goodness! I am so sorry for what you are going through as well. I am praying for you. It has been quite the journey. You really have to be a detective and figure it out yourself moat of the time. I honestly thought my lungs were involved too at first because of my breathing issues especially laying down. I noticed I have severe air hunger laying down. My pulmonary tests came back o.k., but what I think it is that either covid or Autoimmune attacked my phrenic nerve/Diaphram so when I lay down my belly is not insync with my belly. It is almost like my belly is doing all of the work. The Physical Therapists knew so much more about this than the Neurologists. I honestly believe Physical Therapists see weirder cases than Neurologists so they sometimes understand the whole body better. I just think Covid is basically like a Tornado going through the body with all of the destruction it does. Bringing out underlying autoimmune, dormant viruses, etc. I honestly did not think I was going to make it the first year because I had lost so much weight. I was in such good shape it is wild how things can happen so fast. I sometimes wonder if all of the exercise in the sun/warmer weather contributed too. I noticed on the Long Covid sites most of the people were athletes. I think in many cases including mine it is possible I had covid at first and did not know what was wrong and kept on exercising and kept pushing through which just made things worse. I will be forever grateful to my Primary who believed me and had a hunch that autoimmune was involved some how. My heart goes out to anyone that is going through something similar with no solid answers. I would just say never give up and just find someone that believes you and is willing to help.