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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 3 days ago | Replies (803)
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@jonimclark

My dad has been diagnosed with histiocytic sarcoma. Since the doctors say thay there have been only a few hubdred reported cases, the only option they have given is aggressive chemo. Has anyone else on this page had this type of cancer?

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Replies to "My dad has been diagnosed with histiocytic sarcoma. Since the doctors say thay there have been..."
Kanaaz Pereira, Connect Moderator | @kanaazpereira | May 21, 2018

Hello @jonimclark,

Welcome to Connect. I'm so sorry to hear your dad has been diagnosed with such a rare cancer. I'm tagging @ecdhope who's talked about Erdheim Chester disease – a histiocytic neoplasm. You can read the discussion here:
https://connect.mayoclinic.org/discussion/ecd/
@jonimclark, could you tell us a bit more about this sarcoma? What tissues or organs are involved? What symptoms is your father managing?

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