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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 6 days ago | Replies (840)

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@damlady2

I have had 12 surgeries for removal of my lipsarcoma since 1988. I have also had radiation and a cyroablation. I will be having a biopsy of what appears to a return again of my disease. I have also had lung cancer with removal via VATs. All but 3 surgeries have been at Rochester Mayo. The recent surgeries have been a concern because they are close to the bronchial plexus as demonstrated again on the most recent. Has anyone had multiple returns of lipo sarcoma like this after surgery and radiation?

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Replies to "I have had 12 surgeries for removal of my lipsarcoma since 1988. I have also had..."

Hello @damlady2,

Welcome to Connect. Thank you for sharing your history with liposarcoma. I'm tagging @udderplace, who also started this discussion to talk about chemo treatment with Gemzar:
–Liposarcoma: Starting treatment with Gemzar https://connect.mayoclinic.org/discussion/information-on-liposarcoma/

I'm also tagging @fredscape @godsgotthis @kathythornjohnson who also have a diagnosis of liposarcoma to join the conversation.

Last year, the U.S. Food and Drug Administration (FDA) approved two chemotherapy drugs known as "orphan drugs"to treat liposarcomas – eribulin mesylate (Halavan) trabectedin (Yondelis) https://www.medicalnewstoday.com/articles/318771.php
Orphan drugs are treatments for rare medical disorders that have less than 10,000 diagnosed cases a year; the two drugs are used
to treat liposarcomas that have spread or metastasized, or that cannot be surgically removed and have failed to respond to previous chemotherapy regimens. @damlady2, are you familiar with these treatments?

Thank you for the info. I am very hopeful that after the biopsy my Orthopedic surgeon can provide me with a solution for treatment. The main concern right now is the effect on my right shoulder arm nerves. I have had tingling and limitations with movement. I know I am being treated with the best liposarcoma Doctors.

I've had 6 recurrences since 2011. I have myxoid liposarcoma with rc. I've done 3 kinds of chemos, radiation, and cryoablation. I think it's pretty common for my subtype to recur.