Looking for people who had a G6 diagnosis and opted for RARP
Howdy, I would love to hear from people out there who originally diagnosed with G6 PCa who opted for RARP. Any thoughts? Regrets? Deciding factor and recovery/outcome. This is me, G6, low decipher, low PSA but a significant family Hx. My father died from PCa in his 70’s. I’m currently on AS but not really enjoying the “hurry up and wait” approach. I apologize to everyone who recognizes my handle and story as I am sort of repeating a question I posed several months ago, I just need to hear some supportive stories….
Thank you all!
Pete
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@mtcoastie
from my personal experience:
G6 from biopsy sounds less intimidating compared to higher numbers but the G6 grading was done based on very small samples and is not a guranteed number. I was told mine was a G6 based on biopsy and was highly recommended to stay on AS. But I decided to go with RARP. The final pathology came back as 3+4 ( 6-10% of pattern 4) and on post op visit my surgeon said that I made the right call! I had an experienced genito urinary oncology surgeon from Vanderbilt. I have complete control of bladder from the time catheter was removed; except once every two or three months when I feel tired and try to stretch my upper body I get a drop escape from my body. I don't have ED problems. It's been a little over a year and I feel peace that I got it out. The two main factors, i considered was AS doesn't show the real picture and I didn't want to risk my life based on guess work and if left untreated or unremoved it is going to keep growing and get worse. I was 57 when i was diagnosed and had surgery just before i turned 58.
I wish you all the best.
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3 Reactions@mtcoastie All you statements are true regarding your age and recovery, but G6 is the lowest possible grade anyone would consider being cancer and some consider it pre-cancer to be watched. It may never develop any further in your lifetime. There are lots of other treatments available at your stage, but again it’s up to you and several other factors like number of cores, percent of cores, location of tumor, confirmation it’s localized, etc. My tumor 3+4=7 (1 core out of 13, 70% of the core was abnormal cell growth, less then 10% was 4) was on the front half interior to the prostate in the transitional zone. I also had a Prostox test of my biopsy slides that said I would not be a good candidate for high dose radiation, so I opted for Hemi Gland Tulsa Pro at Mayo in Jacksonville. Very few centers do this procedure and it just started to be covered by insurance in June if 24. They essentially ablated the entire front half of my prostate so I still have half of a prostate. The back side is where all the important stuff is like semen and nerve bundles. My initial PSA pre-surgery was 4.5 and cancer was confirmed with a PRAIDS 5 MRI and biopsy, and PSMA PET confirmed it was confined. Anyways at my 3 mos test yesterday at Mayo my PSA was 0.51, so much lower then the Dr expected. I’ll keep having PSA blood test every 3 mos since I still have half a prostate, but all looks good so far. I was able to have sex 3 weeks after the precedure and no issues with ED. I’ve also had no urinary issues at all. As a matter of fact I urinate much stronger and better since the procedure because my tumor was restricting urine glow in my ureathra. I am very happy I chose Tulsa Pro which has a cure rate of about 85-90%, and less then 1% quality of life impacts. It also does not limit any salvage treatments in the future. You need to choose what’s right for you, but with G6 you have time. Get a 2nd, 3rd, 4th etc opinion and visit cancer center if excellences in your area. I spoke to 9 Drs in 9 mos at Advent Health, Moffit cancer center and Mayo. Get all the tests you can including a decifer, prostox, and Artera AI before making a decision. Don’t get pushed by one surgen to immediately have surgery that you may regret the affects of the rest of your life. You have time, use it .
I will agree with several others that mention Active Surveillance. I was diagnosed 15 years ago with G7 and just in the last year was treated. So had 15 years of good bodily function. During that 15 years, the med research exploded with many new treatment options. What will happen in the next 15 years? “It’s cancer, so get it out” has needlessly damaged a lot of men.