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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 6 days ago | Replies (840)

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@fredscape

I have been diagnosed with Grade 3 Liposarcoma of the abdomen. I had an approximately 5cm tumor removed Jan 27, 2017. the surgeons got the margins they needed but it is back. I have just started treatment with Lartruvo. The Doctors have not been very encouraging at all. Any information especially positive, would be greatly appreciated.

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Replies to "I have been diagnosed with Grade 3 Liposarcoma of the abdomen. I had an approximately 5cm..."

Welcome to Connect, Fredscape.
I'm tagging @udderplace @kathythornjohnson and @godsgotthis who also have a diagnosis of liposarcoma to join the conversation. @udderplace also started this discussion to talk about chemo treatment with Gemzar.

- Liposarcoma: Starting treatment with Gemzar https://connect.mayoclinic.org/discussion/information-on-liposarcoma/

It's tough when cancer comes back. I understand that Lartruvo (olaratumab) was recently approved by the FDA and now offers an alternative for people for whom surgery and radiation are not an option. Are you getting a combination with doxorubicin? How are the side effects?

Not sure about the doxorubicin but I think so. Side effects not horrible yet. Nausea and fatigue

I am definitely getting a combination Of Lartruvo and Doxorubicin. I am being treated at the Hematology and Oncology Center in Charleston, South Carolina by Dr. David Ellison. Have you heard any thing about the Lartruvo? I think I may be the second person they've tried it on here. They tell me she is ten years older than me (I'm 65) and has done well. Anyway, just groping for information.