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How does Kevzara help with PMR symptoms and pain? I am being weaned
Polymyalgia Rheumatica (PMR) | Last Active: Mar 30 11:10am | Replies (104)Comment receiving replies
I have had PMR for 14 months. Weaned down on the prednisone to 5 mg still with lots of morning pain. Also taking 2000 mg of Tylenol daily. Finally gave up on my dream of totally weaning off prednisone and decided to try Kevzara. I have had two injections and all of my pain is nearly gone. You get so used to the pain you forget what it is like to be nearly pain free. I am curious about what my blood is going to think of Kevzara...but it is great to be nearly pain free.
Replies to "I have had PMR for 14 months. Weaned down on the prednisone to 5 mg still..."
@linnead I tapered off pred last August after being on it for over a year. I was also on Actemra infusions and continued them every 4 weeks. Soon after I went to 6 weeks with no pred. My blood markers became normalized. About 2 months ago my PMR pain returned with a vengeance, although my blood markers didn’t show it returned. Now I’m back on a short course of pred and Actemra every 4 weeks again. I feel better since I’ve restarted pred. I have a new visit with my Rheumy this week to plan the next move. The theory is that I cut back on Actemra too soon after stopping pred. I hope that’s the answer. 🙏
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@linnead
Great news, loved it too.
Am now off it 🤞