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DiscussionDiagnosed with sarcoma? Let's share
Sarcoma | Last Active: 3 days ago | Replies (853)Comment receiving replies
Replies to "Hello my name is Zaruhi and I am a 33 year old female. I went into..."
Welcome to Connect, Superdave.
@zaruhi, how are you doing? Have you started chemo and radiation?
@zaruhi I know the situations are different but crazy coincidence, I ended up in the ER on November 6, 2017 because of the kidney pain caused by my tumor that was found to be Ewing's Sarcoma (It took about 3 weeks for a definitive diagnosis). How are you doing? I have been getting alternating chemo treatments every 2 weeks, and had surgery after round 7, then 4 weeks off for recovery and will be starting round 8 tomorrow. I found that the odd treatments are harder on me (VCD, vancomycin, cyclophosphamine, and doxorubicin) I have ended up back in the hospital due to neutropenic fever and had to have blood transfusions because of my low hemoglobin each time. I hope your treatments are going well and would be glad to hear from someone in similar circumstances. I am only getting chemotherapy and surgery(done last month), radiation was ruled out because my tumor was undetectable on CT after only 3 rounds of chemo.
I'm sorry you have to go through this. It is scary. I have been dealing with a similar situation. First a little bit about about myself. I'm a 41 year old married father of 4. I'm a physician (pathologist) who did my training at the Mayo Clinic. In 2015 I was diagnosed with a synovial sarcoma that was growing on my diaphragm. I went through 5 rounds of chemotherapy and surgery. I was doing well until this last summer when I had a reoccurrance. I went through another surgery and 4 rounds of chemo. Now I'm recovering and there is no sign of cancer (let's hope it stays that way).
You'll be amazed at what you can handle. I found that with help of family and friends I was able to get through some very tough times.