@banjoman

Good luck and sounds like your in good hands. Also hope your issue is not neuropathy and sounds like theres a good chance it isnt.

To be diagnosed its usually an EMG and a nerve conduction study that can hurt a little bit and those balance exercises you mentioned. I had to get those tests from a neurologist. And punch biopsy for Small Fibre neuropathy.

I suppose a chiropractor may do those tests at least the balance one too so they can diagnose but its the cures they sell that annoy me. I was led into quite a bit of false hope when I got this disease…… I am also no expert but just basing what Ive been told by doctors and looking at medical documents online ever since diagnosed.

If you do end up with neuropathy Im afraid if you dont have a treatable neuropathy you will find yourself having to treat it yourself and decide on those expensive treatments offered. Thats why youll see people asking about supplements, red light therapy and so on. And then its always “it might work for some but not everybody”.
So you end up trying things and if that red light therapy works then great!

The most I was offered was gabapentin and “dont lose hope.” I dont mean to be doom and gloom but thats been my experience and what I was told by other patients when this first started. I didnt really believe it at first but do now.

I should mention I dont like the neurologist Im seeing but Im putting it down to he cant do anything kind of like if I had a terminal cancer diagnosis. I think Id be getting more help if I had cancer to be honest. Ive seen 6 different doctors before landing with that neurologist so Ive kind of resigned to my fate.

But theres people here like John who have lived with this alot longer than I and may have great advice so this is just my thoughts as Im not a healthcare worker so just my opinions of what I have gathered