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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 3 days ago | Replies (853)
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@godsgotthis

Hi my name is Chris and I am new to all of this cancer stuff. I was diagnosed with a myxoid liposarcoma in my left thigh last month and am starting my first radiation treatment at Mayo today. I am excited to get on the journey to healing. I am looking forward to hearing from you any tips and tricks to making these next 5 weeks go by quickly and as painlessly as possible. Thanks in advance for any advice.

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Replies to "Hi my name is Chris and I am new to all of this cancer stuff. I..."
Colleen Young, Connect Director | @colleenyoung | Oct 16, 2017

Hi Chris, I'm glad you found us here on Connect. I hope @udderplace and @kathythornjohnson will return to share the experiences with liposarcoma with you. Chris are you getting daily radiation treatments? Have you had surgery?

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Kathy | @kathythornjohnson | Oct 18, 2017

Hi. I have been battling myxoid liposarcoma with round cell for 6+ years. Mine has around cell component. Mayo is the best. Radiation has few side effects. I would get tired more easily. Towards the end of treatment you may have skin breakdown. Myxoid responds well To radiation. You should have good results. Stay positive. It's a marathon not a sprint.

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godsgotthis | @godsgotthis | Oct 18, 2017

I am getting daily radiation. I am on Day 3 today. Surgery should be somewhere in December if all goes well. I am meeting with the surgeon tomorrow.

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me67 | @me67 | Oct 18, 2017

When I had my 25 sessions of radiation, I would go to the gym and do a workout. It kept me from fatigue and my mind occupied. Just a thought to keep yourself strong for your upcoming surgery

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