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Small nerve fiber neuropathy, severe head pressure and blurry vision
Neuropathy | Last Active: Mar 26 6:10pm | Replies (18)Comment receiving replies
Have you figured out any answers or relief on what’s going on with you? I’m reading your posts and started experiencing nearly identical symptoms in November and am getting no answers.
Would love to have ANYTHING to try and point my doctors in the right direction. They keep calling my head pressure “headaches” and it doesn’t feel like the same thing.
They did find cervical spondylosis, but don’t feel it’s severe. Also a brain tumor - but feel it’s not causing any symptoms.
My instinct feels like we’re experience long something messing with our nerves.
Replies to "@rnlorena Have you figured out any answers or relief on what’s going on with you? I’m..."
@jessicad Well my Dr. appt. Is May 5th. That will be day 442 that I have been trying to get help for what has been going on with me. I start by seeing the ARNP first. I have had what I call head pressure. ÌT started on the lower right side of my head above my neck. Since then and not to long ago it started on the other lower side on the back of my head so when it comes it’s on both sides now. I write down every symptom so I can tell the ARNP when I go. I had a MRI of my cervical spine with and without contrast. I also have cervical spondylitis (arthritis). I have stenosis (narrowing) in every disc. I also have two cervical discs one right next to the other and the ligamentum flavum has unfolded and is causing stenosis in the disc. The ligamentum flavum is a band of tissue that runs through the spine. I get pains under my arms, in my chest. I had a pulsation in my left inner ankle once. I had a sharp pain down my back once. I had a pain behind my left ear and right after I had one behind my right ear once. I am noticing pin pricks (paresthesia). I have been taking 600 mg of Alpha Lipoic Acid for those pin pricks and it’s funny how the Alpha Lipoic Acid I have had burning on top of my head once. (Related to nerves) I had pain in my right great toe and toes next to it once. I will explain what a headache is to me. The last one I had was 31 years ago. I had a virus or flu. My head was pounding. It didn’t matter if I laid down or sit down. That was a headache to me. What I have now has all been pressure. Till one day several weeks ago. I woke up and I had a horrible ache in my head. It was strange. It was different then the pressure. Not pounding. Just an ache. I wouldn’t call it a headache. I took Tylenol before I went to bed and woke up with it. Same thing. It hadn’t changed. However, two hours later it was gone. Like poof. I did not take anything when I got up. So the spondylosis can cause problems. The stenosis (narrowing) it can put pressure on the nerves. Did they do a MRI of your neck? I want a Doctor to tell me what in my neck caused the head pressure and blurry vision. IF anyone has that go to the ER. Then you will need to see an Opthalmologist to make sure your retinas are okay. I asked one of the Doctors if that could happen again and he said yes. I believe all of the things that I have is related to the nerves in my neck and the unfolding of the ligamentum flavum. My neck is a mess. Keep track on paper everything that you experience. I find that helpful. To everyone who reads this, the medical field has changed and in my opinion not for the better. You must be your own advocate. Read up on things and ask questions. @jessicad I hope you get the answers that you need. After I see the ARNP supposedly I will then get to see a Neurosurgeon. After my appointments I will come back and let everyone know what has transpired. @rnlorena
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@jessicad
I read your post. Not sure if this is any help but I get pressure headaches and was diagnosed with a Meningioma. It was found incidentally after I fell and did a CT scan last December. I hope you find out what is causing this. Be well.