← Return to Diagnosed with sarcoma? Let's share

Discussion

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 11 hours ago | Replies (886)

Comment receiving replies
@kathythornjohnson

What I've learned during the last 6 years:*The actuality of my situation is rarely as awful as my imagination.*There is always reason for hope. What you hope for may change but there is always hope.*Dont believe everything you read on the Internet about your prognosis. Often, what you read on the Internet is best case or worst-case. We are rarely best case or worst-case. *When your situation is hardest remember that you can get through the next 60 seconds. Break it down as much as you need to. *If you are working with Mayo Clinic, you have world renowned doctors who see Sarcoma daily in your corner. Make certain you are at a sarcoma center. A regular oncologist may only see one or two sarcomas in their career. *Don't ignore your mental health. Ask for help getting through treatment and the fear following treatment. There are options. 

Jump to this post


Replies to "What I've learned during the last 6 years:*The actuality of my situation is rarely as awful..."

I completely agree, whether you saw my post or not is irrelevant. I've got Kaposi Sarcoma which is most commonly associated with organ transplant recipients or HIV. Neither applies to me. My VA doctor who saw many people with HIV in the 90's has never come across this or ever considered it a possibility.